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THE LATEST PODCAST: Rett Syndrome and How You Can Help

Jeff Hall

Posted on October 3, 2020 22:03

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October is Rett Syndrome Month. It's a rare and very challenging disease that affects just one in 10,000 girls. It's a tough go, but there is hope. Tim Freeman from the Rett Syndrome Research Trust tells us more.

My niece and nephew, Alexandra and Balint, have a beautiful daughter, Maya, 2.

Maya was recently diagnosed with Rett Syndrome.

This is a very rare and challenging situation, as you will learn in THE LATEST PODCAST:

https://thelatestpodcast.com/37-rett-syndrome-what-it-is-and-why-we-should-know-about-it

It's possible gene therapy could lead to a cure for Rett Syndrome in a few years, and the Rett Syndrome Research Trust is seeking contributions that will support many of the research efforts now underway.

"Reverse Rett" is Rett Syndrome Research Trust's website that describes Rett Syndrome and all the work being done to overcome it:

https://reverserett.org/

To learn more about Maya, click here:

https://rettgive.org/campaigns/reverse-rett-a-cure-for-maya/

Rett Syndrome parents everywhere will appreciate your interest, support and contributions to this cause.

Special thanks to Karagan Knowles of Emerson College. She is our intern who produced this episode of THE LATEST PODCAST.

 

Jeff Hall, Editor, TheLatest.com

[email protected]

 

 

Jeff Hall

Posted on October 3, 2020 22:03

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Source: Daily Mail

Amelia and Ruby Sampson, from Birmingham, have Rett syndrome. They may not make it to adulthood. Rett claimed the life of...

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